This website is run by Ehlers Danlos Syndrome (EDS) sufferers Nina Parsons and Leah Boxall, to help people with EDS understand and campaign for surgical help with Cranio Cervical Instability (CCI), Chiari Malformation (CM) and Tethered Cord (TC).
For more about us and why we set up this website, please see the About page.
To read our latest news and updates, please see the Blog page. Also subscribe to our You Tube channel!




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