Simplified condition page for family and friends

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Ehlers Danlos Syndrome (EDS) A rare condition that makes tissue and ligaments super stretchy. This causes the body to struggle holding the skeleton together. Different types of EDS causes different issues to the body and can include the heart.

Cranio Cervical Instability (CCI) The neck cannot hold its shape and vertebrae and discs can shift at all levels. Where the head joins the neck can become unstable and when the person turns their head it can begin to dislocate. It can lead to serious irreversible damage if not treated.

Tethered Spinal Cord or Occult Tethered Cord Syndrome (TC or OTC) This causes the spinal cord to be pulled taut and is either congenital or from a form or spinal trauma. The cord attaches itself to tissue and if left untreated can also causes irreversible damage. In the case of OTC it means there have been no findings on the MRI but the patient presents with symptoms and tends to have urology issues that can be tested and reported on.

Chiari Malformation (CM) Where the brain is too large for the skull or there has been trauma that allows the hindbrain (cerebellar tonsils) to get pushed out of the bottom of the skull into the spinal canal. This can then block spinal fluid moving around properly and cause very painful symptoms

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